Welcome!

Those of us with chronic/sero-negative/neurological lyme are struggling to get our voices heard! Talking to eachother is the only way to know we aren't alone. Hopefully that will change in the VERY near future. Living with lyme is a daily struggle that makes the simplest tasks nearly impossible some days. Follow along with me on my journey and please share your journey in return.

Saturday, February 11, 2012

Working and eating....

So I finally was able to get off my butt Thursday night and make candles.  I hadn't done any crafting (other than making 2 quilting blocks) since before Thanksgiving!  I've had so many bad days since then and just haven't had the drive on the good days to do "productive" things.  I will say, I've managed to clean the bathroom a few times since then - thank goodness! - otherwise not so much.  Although I can't say that entirely because I had been better about cooking for myself and doing some light exercise until the medication change.  Now I'm mostly back to relying on the fiance for cooking and watching a lot of tv.

The doctor prescribed me a pill to help me sleep.  I took it for the first time Superbowl Sunday (it was a sad day in New England!) and I slept for 22 out of 25 hours then slept another 5 on top of that over the course of 38 hours (no I wasn't that depressed about the Pats loss).  It was unbelievable!  It was 48 hours before I was completely able to shake the sleep coma off.  I tried taking it again last night and slept 5 hours, got up, made candles for 3 hours, went to bed at 7:30a and slept till 1:30p.  So I don't know what this pill is or is not doing. 

I'm still, for the most part, eating better.  I'm really trying hard to get rid of as much junk food as possible and find whole food substitutions for the junk I can't live without ;-)  Chips are my downfall!  Especially nachos. So I make my own pita chips and tortilla chips by just taking whole pitas or tortillas and baking them in the oven coated with a little oil and a sprinkle of salt.  By doing just 1 at a time I prevent myself from totally bingeing on them, which I am so apt to do and they also are not as addictive as the kinds that come in a bag.  I also experiment with adding spices - I added chilli powder and lime juice last time to my tortillas and they were delicious.  Next time, I would like to try putting some cinnamon sugar on the pitas.  All in all, I'm getting in my veggies, but still struggle with eating fruit.  I'm allergic to some of it and just don't care for a lot of it.  I am trying though.

Last week, however, I was not a good girl and kept having crazy cravings for fast food and large quantities of chips.  I absolutely could not control my cravings and kept binging every night.  I ended up gaining 7lbs out of the 15lbs I lost!  I have been good the last few days although I'm still going over my calories everyday: not by a lot but around 100 calories or so.  I am hoping I will be able to get that back down again.  I am back down nearly 3 lbs but that still leaves me with a little over 4 to lose.  Maybe I'll do some Wii dancing to burn off that extra 100 calories while I'm awake and thinking of it!

To a better day tomorrow :-)

Friday, February 3, 2012

Feeling neglected?

So I've been neglecting this blog.  Right after the holidays I visited my lyme doctor and he changed my meds which means I'm hexing, flaring, having a reaction....whatever you would like to call it.  For the last couple weeks I've neglected everything so it's no surprise.  My to-do list is getting rather long.

The one thing I've been trying to NOT neglect is my health.  I've been trying to eat right, lose some weight and exercise whenever possible.  The exercise thing is a challenge since when I do feel well enough to do it, I usually pay for it later by not being able to walk, but it gets done.  I don't know if it's better to push myself or continue to just lay on the couch....there is no happy medium.  Laying on the couch seems like a bad idea.  I'm afraid I will just get worse and worse and weaker and weaker.

I've been watching what I eat since the middle of December and I'm down 15lbs so that is looking up!  Gaining all the weight after getting sick can't possibly be helping especially having diabetes and early onset heart disease runs in my family (my dad had his first angioplasty at 38 and I'm currently 32).

However, last Wednesday I did happen to feel well and decided in celebration of my birthday I would get a tattoo.  It says "Believe" and is a reminder to believe in myself and believe I will get better!  Hopefully I can truly take that message to heart!