So it's been just under a year since my last posting! This has not been intentional. I ended up quite sick last winter which caused my doctor to decide to put me back on IV antibiotics. Because of health insurance and CT state medical regulations (believe it or not) I had to move back in with my parents in RI to get the treatment. I ended up quite sick and not wanting to do anything and unable to do most things - I honestly could not even remember this website to get back to it! Oh lyme brain... I only JUST managed to find the address again because it was listed on my Facebook page and I did not realize it.
My brain scans do indicate that I have the same damage as someone with early stage Alzheimer's. So my memory is not always so great. I have forgotten full weekends and full days in the past. It's not that I don't realize time has passed, because I do, it's just that I don't remember anything that has occurred during that time. Luckily this has not happened to that extent in a couple of years but I will forget entire conversations or hours may disappear.
I was on the IV meds for just over 7 months! It required daily visits to an infusion center. The nurses were absolutely wonderful and I half looked forward to going! If they weren't so great, I can imagine those could have been the longest 7 months of my life.
Even though I paid for it during the treatment, I have been feeling better lately. I have more energy and motivation. It's certainly a LONG way from normal but definitely an improvement. I'm still plagued by the insomnia though. Strangely it improved while I was back at my parents, but is now back with a vengeance. I'm hoping I can get it back under control again. It's miserable being awake all night and sleeping all day and believe me I've tried everything. I even have one of those LED sun therapy lamps although I've stopped using it the last couple weeks because I am afraid that using it at 2p when I get up will have the opposite affect than what I want. Since it can't really get much worse, I should probably just start using it then and hope for the best.
Anyway, I hope I can get back in the habit of posting and hopefully do it on a weekly basis instead of whenever I get around to it! I have put myself on a schedule the last few weeks so maybe I should add this to it. The last few years I have felt so awful it's been hard to maintain any type of schedule - when you literally can't get off the couch to go to the bathroom it's hard to expect yourself to sweep the kitchen floor! But like I said, I have been feeling a bit better and feel that maintaining a schedule is the next step to feeling a little more human. Basically every Monday I need to sweep/steam/vacuum the floors and every week of the month there's a new room to clean. That's it but it's all I can handle at the moment.
Well that's all for now! Until next week....
Tara
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ReplyDeleteThank you once again blog admin.