Welcome!

Those of us with chronic/sero-negative/neurological lyme are struggling to get our voices heard! Talking to eachother is the only way to know we aren't alone. Hopefully that will change in the VERY near future. Living with lyme is a daily struggle that makes the simplest tasks nearly impossible some days. Follow along with me on my journey and please share your journey in return.

Monday, December 26, 2011

The Holidays

I hope everyone has enjoyed the holidays so far!  I have enjoyed spending time with family and friends.  What I haven't enjoyed is what all that excitement has done to the spirochetes.  Unfortunately they have had a little too much fun themselves!  Christmas Eve started out early with me baking at 3:30a (because I have severe insomnia, not because I am a masochist).  I headed to bed a few hours later but only got about 6 hours of sleep.  By the time I headed home to RI, I was quite tired already.  Halfway through the evening I spent about an hour at a friend of the family's not being able to walk or speak.  Not the most pleasant thing to have happen.  Luckily when it's family and close friends, it isn't such a big deal since they know what is happening but when there are strangers around, it gets kind of embarrassing.

The same thing happened on Christmas Day.  Of course having twin 3.5 year old niece and nephew will make that happen to just about anyone!  Santa was very good to them :-)  They had a lot of energy running and jumping and by the end of the day there was lots of tired crying!  My nephew was crying and a minute later completely passed out in my lap.

It was a fun, but long day for all 3 of us.

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